Jake Zangara

Jake Zangara is the Community Manager for the PCORI-funded Pediatric Renovascular Hypertension (pRVH) PCOR Collaborative and an undergraduate student majoring in Economics at the University of Michigan. Born with midaortic syndrome, a rare vascular condition, Jake brings a unique patient perspective to his work supporting individuals and families affected by pediatric renovascular hypertension. He has been involved with the pRVH PCOR Collaborative since 2020, contributing to patient engagement, research initiatives, and community outreach. In 2023, he founded a virtual patient support group that connects patients and families from around the world through monthly meetings and ongoing communication.

In his role as Community Manager, Jake focuses on strengthening patient engagement, expanding participation in the Virtual Research Network (VRN), and facilitating communication between researchers, patients, and families. He is passionate about advancing patient-centered research and improving the experiences and outcomes of individuals living with rare vascular diseases.