Please note that patient stories shared from the pRVH PCOR Collaborative are meant to create a sense of community and understanding. pRVH is a rare condition and individualized to each patient. Stories shared of diagnoses, treatment, and outcomes are unique to each patient within the story and should
not be generalized.

The pRVH PCOR web site does not provide specific medical advice and does not endorse any medical or professional service obtained through information provided on this site or any links to this site.

Use of the pRVH PCOR web site does not replace medical consultation with a qualified health or medical professional to meet the health and medical needs of you or others.

While the content of the pRVH PCOR web site is frequently updated, medical information changes rapidly and therefore, some information may be out of date, and/or contain inaccuracies or typographical errors.