Providing support and resources for patients with Pediatric Renovascular Hypertension and their families
The pRVH Patient-Centered Outcomes Research (PCOR) Collaborative connects patients and their families with the information, resources and support they need to understand the disease and to pursue the best possible treatments and outcomes.
Join Our Virtual Research Network
Through the VRN, you’ll get access to the Collaborative’s updates, research and educational resources, outreach, and support.
Providing support and resources for patients with Pediatric Renovascular Hypertension and their families
The pRVH Patient-Centered Outcomes Research (PCOR) Collaborative connects patients and their families with the information, resources and support they need to understand the disease and to pursue the best possible treatments and outcomes.
Join Our Virtual Research Network
Through the VRN, you’ll get access to the Collaborative’s updates, research and educational resources, outreach, and support.
Patient Stories
Families across the globe are navigating the complex choices posed by pVRH.
Our Vision
We help patients with pediatric renovascular hypertension get the best care possible. Our diverse and comprehensive team of researchers, clinicians and families will improve the quality of life and treatment outcomes for pRVH patients, and identify lessons possibly applicable to other rare disorders affecting children.
Why the Need for the pRVH PCOR Collaborative?
The decision-making process in this complex landscape is lacking the voice of the patient and family. As such practitioners don’t know which outcomes matter most to pRVH patients and their parents/caregivers.
Through our infrastructure and partnerships, we facilitate PCOR training, support, and networking among patients with pRVH and their families, and critical stakeholders.
