pRVH PCOR Collaborative
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PRVH-PCOR

Providing support and resources for patients with Pediatric Renovascular Hypertension and their families

The pRVH Patient-Centered Outcomes Research (PCOR) Collaborative connects patients and their families with the information, resources and support they need to understand the disease and to pursue the best possible treatments and outcomes.

Join Our Virtual Research Network

Through the VRN, you’ll get access to the Collaborative’s updates, research and educational resources, outreach, and support.

Join Now

Providing support and resources for patients with Pediatric Renovascular Hypertension and their families

The pRVH Patient-Centered Outcomes Research (PCOR) Collaborative connects patients and their families with the information, resources and support they need to understand the disease and to pursue the best possible treatments and outcomes.

Join Our Virtual Research Network

Through the VRN, you’ll get access to the Collaborative’s updates, research and educational resources, outreach, and support.

Join Now

Register Now

Second International Symposium on
Pediatric Renovascular Hypertension

September 18-21, 2022
Ann Arbor, MI

More Information

Patient Stories

Families across the globe are navigating the complex choices posed by pVRH.

  • Benji's Story

  • Cameron's Story

    Cameron's Story

  • Laney's Story

    Laney’s Story

  • Mila's Story

    Mila's Story

Our Vision

We help patients with pediatric renovascular hypertension get the best care possible. Our diverse and comprehensive team of researchers, clinicians and families will improve the quality of life and treatment outcomes for pRVH patients, and identify lessons possibly applicable to other rare disorders affecting children.

Meet Our Team
Dawn M. Coleman, MD

Dawn M. Coleman

https://www.prvh-pcor.org/wp-content/uploads/2021/03/Dawn-M.-Coleman-MD.jpg 1000 800 developer@coldspringdesign.com https://www.prvh-pcor.org/wp-content/uploads/2021/02/pRVH-PCOR-Collaborative-Logo.png developer@coldspringdesign.com2021-03-10 23:01:502022-05-26 12:45:16Dawn M. Coleman
Santhi Ganesh, MD

Santhi Ganesh

https://www.prvh-pcor.org/wp-content/uploads/2021/03/Santhi-Ganesh-MD.jpg 1000 800 developer@coldspringdesign.com https://www.prvh-pcor.org/wp-content/uploads/2021/02/pRVH-PCOR-Collaborative-Logo.png developer@coldspringdesign.com2021-02-28 23:04:552022-05-26 12:46:32Santhi Ganesh

Rajesh Krishnamurthy

https://www.prvh-pcor.org/wp-content/uploads/2022/01/Rajesh-Krishnamurthy.jpg 1000 800 projects@coldspringdesign.com https://www.prvh-pcor.org/wp-content/uploads/2021/02/pRVH-PCOR-Collaborative-Logo.png projects@coldspringdesign.com2021-02-07 12:00:122022-05-24 10:53:03Rajesh Krishnamurthy
Rulan S. Parekh, MD

Rulan S. Parekh

https://www.prvh-pcor.org/wp-content/uploads/2021/03/Rulan-S.-Parekh-MD.jpg 1000 800 developer@coldspringdesign.com https://www.prvh-pcor.org/wp-content/uploads/2021/02/pRVH-PCOR-Collaborative-Logo.png developer@coldspringdesign.com2021-02-02 23:06:342022-05-26 12:48:27Rulan S. Parekh
Lindsay Wilson, RN

Lindsay Wilson

https://www.prvh-pcor.org/wp-content/uploads/2021/03/Lindsay-Wilson-RN.jpg 1000 800 developer@coldspringdesign.com https://www.prvh-pcor.org/wp-content/uploads/2021/02/pRVH-PCOR-Collaborative-Logo.png developer@coldspringdesign.com2021-01-05 23:26:312022-05-26 12:46:06Lindsay Wilson
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Why the Need for the pRVH PCOR Collaborative?

  • Low disease frequency limits existing data.
  • Optimal management of pRVH remains ill-defined.
  • Expansion of novel surgical and endovascular techniques have changed the landscape of patient care.
  • Multidisciplinary high volume referral centers of excellence are few.
  • Patients/families often challenged to balance differing sets of recommendations.

The decision-making process in this complex landscape is lacking the voice of the patient and family. As such practitioners don’t know which outcomes matter most to pRVH patients and their parents/caregivers.

Through our infrastructure and partnerships, we facilitate PCOR training, support, and networking among patients with pRVH and their families, and critical stakeholders.

Questions & Answers

young girl in hospital bed surrounded by caring staff and family

Specialized Care Facilities

teddy beat tucked into yellow blanket and holding a thermometer

Related Diseases

Child hand with catheter on bed
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